Another crazy day with the Sorensen's: lovely days...

Tuesday, July 29, 2008

lovely days...

so I don't know why I haven't posted in a while. I guess a long weekend will do that? Saturday was Cora's birthday and we had a big party not really for her, We do a bbq and fireworks and had a ton of people over and it was FUN!! I will post pictures when some one sends me some lol.

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the story..

When Jacob was born we looked at his sweet blue eyes and his cotton white hair. Some one made a joke... "maybe he's albino" "nah" we said. Around 3 months we still didn't feel like he looked and smiled at us. so we went into the dr, scared! was he blind?? Our Dr didn't know either he did a couple tests and referred us to an eye Dr. We went in about a week later to the Rocky Mtn Eye Center. to our suprise the dr walked in after looking at his chart (his nurse did a couple tests) and said "Jacob has OcularCutaneous Albinism." WOW!!! OCA is one of many forms of Albinism. We spent the next few week pouring over the internet finding info and to our sweet relief we found the NOAH forum! It has been a great support for us thru the years.