Another crazy day with the Sorensen's: March 2009

Thursday, March 26, 2009

Families are Forever!

I take great comfort in those words! Last week my cousin and his wife lost their 8 mo baby to SIDS. It has been heartbreaking! Heavenly father has a plan for him and I take great comfort in that thought. The funeral service was yesterday, They live in Arizona and we didn't go but when I found out his mommy wanted balloons released in his honor I jumped at the thought! Bridgette was at my hosue so she joined us in the releasing. here is a wonderful website dedicated for little sage that my uncle and cousin (Sages grampa and uncle) set up for him. http://sage.eldredge.org/ I have shed many tears for this sweet angel that Heavenly Father took home too soon, I have prayed for his parents that they can find the comfort they need. I love you all.

the story..

When Jacob was born we looked at his sweet blue eyes and his cotton white hair. Some one made a joke... "maybe he's albino" "nah" we said. Around 3 months we still didn't feel like he looked and smiled at us. so we went into the dr, scared! was he blind?? Our Dr didn't know either he did a couple tests and referred us to an eye Dr. We went in about a week later to the Rocky Mtn Eye Center. to our suprise the dr walked in after looking at his chart (his nurse did a couple tests) and said "Jacob has OcularCutaneous Albinism." WOW!!! OCA is one of many forms of Albinism. We spent the next few week pouring over the internet finding info and to our sweet relief we found the NOAH forum! It has been a great support for us thru the years.